Awesome Recovery News!!

I am so excited to report that after graduating from the 3-week Pain/Symptom Rehabilitation Center at Mayo Clinic in Rochester and continuing the program at home, I am nearly 100% recovered!

My entire perspective on my health, my symptoms, and my blog has changed. In the program, we not only focused on the physical elements of getting better (physical therapy, occupational therapy, nutrition, hydration), but also worked A LOT on the cognitive side of recovery. One of the biggest changes that they helped me make over the weeks was no longer focusing on my symptoms, and instead, focusing on functioning DESPITE the symptoms. It was and is incredibly hard, especially when dealing with sudden issues. But I’ve learned so many amazing coping skills for real-time management, have overcome countless fears with exposure therapy, and learned how to set myself up for living AND thriving regardless of if I’m having a flare-day or a great day.

After years, I am now back to driving, doing stairs, going out with friends, and even exercising!! It’s absolutely mind-blowing, and I am so incredibly grateful to have had the opportunity at Mayo.

As I move away from symptom/illness-specific content, my hope is to continue blogging about the journey and the personal development in the midst of managing these conditions.

 

For a link to the program, click here.

For a link to my key takeaways, click here!

So cheers! To the passage of time, to hard work, and to milestones such as this one.

  • It has been 8 months since graduating from the Mayo Clinic Pain Rehab Program, and I continue to be 85% recovered (depending on the day) from postural orthostatic tachycardia syndrome (POTS) and chronic fatigue syndrome (CFS). I never would have imagined that my health could make such......

  • “You should exercise more.” A brutal statement. One I had tried to fulfill on my own, and time and time again, had failed. It was a frustrating piece of advice from my doctor, and felt so out of reach as I navigated my bouquet of chronic illnesses....

  • I am so excited to report that after graduating from the 3-week Pain/Symptom Rehabilitation Center at Mayo Clinic in Rochester and continuing the program at home, I am nearly 100% recovered!...

Kaley
kaleywied@gmail.com
3 Comments
  • Braylynne
    Posted at 06:37h, 22 March Reply

    AMEN sister!!! God bless you! 💗

  • Nicki Livingston
    Posted at 07:50h, 24 April Reply

    So wonderful that you are seeing such great recovery results! Would you be able to share more info about how you got into the Mayo Clonic program? I have two daughters who are both suffering with POTS. Feel free to email me any info you can share. Livingjunk@sbcglobal.net Thank you so much!

    • Kaley
      Posted at 20:46h, 27 June Reply

      I am so sorry your daughters are struggling – YES. I would love to share more about how I was able to get into the program. I will email you!

Post A Comment