Years ago, I thought there was a 0% chance I’d ever re-enter the workforce - I had a hard enough time keeping myself fed and watered, and being responsible for tasks at a workplace was out of reach. Thankfully, getting treatment and sticking to a...
It has been 8 months since graduating from the Mayo Clinic Pain Rehab Program, and I continue to be 85% recovered (depending on the day) from postural orthostatic tachycardia syndrome (POTS) and chronic fatigue syndrome (CFS). I never would have imagined that my health could...
“You should exercise more.” A brutal statement. One I had tried to fulfill on my own, and time and time again, had failed. It was a frustrating piece of advice from my doctor, and felt so out of reach as I navigated my bouquet of...
I am so excited to report that after graduating from the 3-week Pain/Symptom Rehabilitation Center at Mayo Clinic in Rochester and continuing the program at home, I am nearly 100% recovered!...
The Valsalva maneuver is EASILY the most fascinating thing I’ve gotten to do in this entire medical adventure. On the surface, it’s a fairly quick and easy part of autonomic testing, but underneath, it’s one of the coolest and most complicated mechanisms of the human...
With postural orthostatic tachycardia syndrome (or POTS), life is already a bit of a balancing act to keep all systems running smoothly, so as I prepared for surgery this fall, I was a bit nervous about how my body might handle it. The combination of...
My sister is a rockstar. I know I write a lot about my own journey with chronic illness, and I can often focus on the ways that I am able to manage my own symptoms and challenges. But what I don’t talk much about is the...
Without a doubt, midodrine has been crucial to the management of my postural orthostatic tachycardia syndrome. Now that I have been on it for 2 months, I can confidently say that I experience significant benefits, minimal (if any) lasting side effects, and am overall pleased...
Living out the lifestyle changes that are recommended for postural orthostatic tachycardia syndrome (POTS) can be easier said than done. Having POTS is hard. It’s inconvenient. It is not fun. And yet in the midst of daily limitations and hourly coping, finding small yet meaningful...
People with postural orthostatic tachycardia syndrome (POTS) are notorious for drinking pickle juice, double-salting their fries, and even eating salt right out of the shaker. In the early days of having POTS, I certainly had a thing for salami, green olives, and eating plain lunch...